Recommended resources

Patient and caregiver information on urinary incontinence and bladder dysfunction:

Continence Product Advisor (the best scource of information about pads and other urine collection devices):  www.continenceproductadvisor.org

The Simon Foundation (An outstanding patient advocacy group who also sponsor a scientific meeting aimed at developing innovative products to manage and cure incontinence.  There is lots of quality material here for patients and their caregivers.):  www.simonfoundation.org

The National Association for Continence (An patient advocacy organization with excellent patient/caregiver information including podcasts.)  www.nafc.org

American Urological Association Guideline for Overactive Bladder (the full recommendations of the AUA for evaluation and treatment of OAB are available to the public):  www.auanet.org/education/guidelines/overactive-bladder.cfm

Information on Interstitial Cystitis/Bladder Pain Syndrome

American Urological Association Guideline on IC/BPS (The guidelines for evaluation and treatment of IC/BPS were revised in 2014 and are available to the public.  Dr. Payne was a member of the committee that produced the guidelines):  www.auanet.org/education/guidelines/ic-bladder-pain-syndrome.cfm

There are three patient advocacy groups with helpful websites.  The IPBF is a particularly good source for current scientific literature.  The ICA has high quality patient education materials and they also sponsor pilot clinical research trials.  The ICA has been very effective in lobbying Congress for large scale research funding.  Dr. Payne has been a member of the Medical Advisory Board of the Interstitial Cystitis Association for many years.  Many patients have found the ICN Community to be an effective source of support and information.  Check out their App for dietary management of bladder pain.

• International Painful Bladder Foundation:  www.painful-bladder.org
• The Interstitial Cystitis Association:  www.ichelp.org
• The Interstitial Cystitis Network:  www.ic-network.com

Neurogenic bladder

Brochure from The American Urological Association/Urology Care Foundation (There is a real lack of good information for patients with various types of neurogenic bladder.  This Fact Sheet, published by the AUA Foundation presents a good overview):  www.urologyhealth.org/_media/_pdf/BH_NeurogenicBladder_FactSheet_2014.pdf